Tuesday, March 23, 2010

Update

Hi all - Wendy here updating for Heather:   After yesterday's upsetting news in regards to Asher's care, there are some positive changes on the horizon.    Heather, being the amazing advocate that she is for Asher, sent out a text message that she is asking for a transfer to Sick Kids.   I don't have specifics, she indicated it was a very long "gothic type horror story." I do know that Liz (the NP) has been on the phone to Sick Kids arranging the transfer.   I also know that Sick Kids has ordered a fat free diet for Asher because he's showing all the signs of chylo and a fat free diet is the treatment.   Heather's response "this feels better already".

As of now I do not know when Asher will be transferred or how.   When I hear, I'll update again.   Keep them in your thoughts and prayers please that this happens very soon and that Sick Kids gets to the bottom of Asher's rhythm issues and grey colour.

Wendy

1 comment:

Allison said...

Thanks for updating again - I was hoping that Heather would be able to get the ear of Sick Kids. Heather, I hope the Jelly Bellies hit the spot - and that Sick Kids can do for Asher what is necessary and appropriate. Hope you guys enjoy the movies...