No, i didn’t forget about you...

I worked out this afternoon instead of posting. And as i worked on my glutes and pecs and biceps (which now have some nice definition, by the way J), i pondered weakness. But that's a post on another blog... which will hopefully be ready in the next couple of days. (cut me some slack, here, people! I'm a single mom with 3 kids, one of whom has his own blog, i haven't been sleeping lately – arg, hypomania – and i'm working on figuring out my life at the moment... but i digress...)

Ok, so, Asher. This is his blog, after all. Focus, heather, focus....

Here we go...

Monday in London. Right.

Ok, we started in cardio. That went nicely. No tests. Yay! Asher's had enough tests lately, i think. And we didn't even see a doc!

Ok, i lied. I spied one wandering about the clinic. Dr Weslisch. She looks nice, and she kept eyeing Asher, but we didn't speak. I'm assuming that will happen soon enough, in emerg. The winter, it is a-coming. Anyhoo...

We only talked to liz yesterday. Your basic check-up. Sats were 85% (i know, i'm ecstatic, too!), BP was 109/43. Why do i remember these numbers? I don't know. Not like any of us needs to know the specifics, unless you're a cardio who used to follow my boy and you're curious... i didn't catch the pulse. Liz cleared it all before i got to that part. I don't think liz wants the parents to know that stuff. And why should we, really? But i have learned... sometimes, you need to know. So it's best to know as many of those numbers as possible. Even if you don't know what they mean. Although,by now, much to many a cardio's chagrin, i know what they mean. Yikes! Wow, i'm tired, i'm babbling. Ok, i'll just finish this off and go to bed...

So, the appointment was left like this: we go back in January for an echo. That will be six months since his last echo (in London, anyway), and then we're aiming for july. But did you catch that? We get to go 2 months between cardio appointments! We haven't gone that long since, what? February, i think. It's been a long time, anyway. So that's cardio.

Of course, this plan is ignoring the fact that we're at the end of October, and the fall is upon us, with winter following close behind. And we all know that Asher doesn't tend to do so well in the winter. Stupid wonky immune system. (and yes, i'm still confused over immuno. I mean, really, does anyone out there understand it?! Seriously! I don't even know where to start looking for info, that's how confused i am! Arg. Ok, enough of the rant... on to the rest of the day...)

So, after cardio, Asher and i had coffee with tanna, because yale was still in the unit and Asher can't go in for a visit. But tanna came out. Yale's doing better, though he's on his way now to Toronto for a work-up for a transplant. Let's hope it all goes quickly, and he can get listed, and his wait won't be too terribly long. Check his blog for details. The link's on the sidebar.

Then, off to Interventional Radiology. Asher's tube had started leaking on the weekend, but i thought it was the syringes on Saturday. Then i checked it to be sure, and nope, it's coming out of the tube itself. So, it had to be replaced. Even the doctor didn't want to do it. She was the one who had replaced it the last time... which, you'll remember, was last Tuesday. But they check, and the tube was actually cracked. There was a quite a split there. So, it had to be replaced. That was exhausting. But, Asher's getting all his formula and meds again, so that's good. I guess when you look at the big picture, it's not so terrible... well, for me it isn't. But then, i wasn't pinned down on the table under a GIANT x-ray machine while people in masks and lead stuck a tube in my small bowel. It's the one thing Asher can't stand. Tube changes. He hates them.

So, that was our day. First good, then not so much. And of course, all day, Asher didn't stop. He walked from Tim Horton's to IR, and then ran all over the place for 45 minutes in the waiting area and surrounding hallways. I think he missed the memo that said, "half a heart. Should get tired." Is there a doctor out there who can talk to him for me? Just explain the whole concept of rest for the heart kid. Because, yeah, he doesn't get it. Timmy's to IR is a long walk. Uphill. And he did it without complaining. In fact, he made it up that hill faster than tanna and me, and we have two ventricles! What's up with that?! Sheesh! Lol

So there you go. Maybe i'll edit this in the morning, but i'm too tired for that right now, so i'm going to bed. Talk to you later! J