tag:blogger.com,1999:blog-6588255712079754328.post5698241925463684884..comments2023-09-08T07:55:17.324-04:00Comments on A Wonky Kind of Beautiful: for deirdre, in hopes that you'll read this before wednesday...Heatherhttp://www.blogger.com/profile/08482109987411601315noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6588255712079754328.post-90790462757340838082010-05-05T23:04:53.030-04:002010-05-05T23:04:53.030-04:00Hoping that this latest thing won't be a real ...Hoping that this latest thing won't be a real big deal. You are doing a great job.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6588255712079754328.post-2019380694306479242010-05-04T07:21:25.576-04:002010-05-04T07:21:25.576-04:00Another weird thing in Asher's little heart. ...Another weird thing in Asher's little heart. Maybe it's a good thing that he seems oblivious and just keeps on living his life the way he wants to. In the meantime, I realize how frustrating and exhausting this is for you. Yet another thing to be concerned about. Hopefully this is something that can be resolved easily and quickly. In the meantime, I'm praying for Asher, for you, and for all those medical type people who need to find out exactly what's going on in his heart and then fix it. Where's Buffo when you need him? Seriously, have you considered giving him a call? I'll talk to you later today.Momnoreply@blogger.comtag:blogger.com,1999:blog-6588255712079754328.post-17443495452585098392010-05-04T06:52:27.338-04:002010-05-04T06:52:27.338-04:00Oh Heather :( I am so sorry. I thought you'...Oh Heather :( I am so sorry. I thought you'd be free and clear - at least for a while from new problems! I'm hoping it was a one time blip or something they can resolve with some pacemaker tweaking, something easy FOR ONCE something easy.<br />My heart broke when I read your posts.<br />I'll try to find you via phone or online today.<br />WenWendyhttps://www.blogger.com/profile/16080352553700502661noreply@blogger.comtag:blogger.com,1999:blog-6588255712079754328.post-24465906117011051272010-05-04T06:00:48.189-04:002010-05-04T06:00:48.189-04:00What a nightmare Heather - I can understand how yo...What a nightmare Heather - I can understand how you must be feeling - once the Fontan and pacemaker surgeries are done, you can't help but feel that it's all done and dusted... and then you get hit with something else from left field.<br />I'm exactly the same as you - I understand Charlie's heart perfectly, but electrophysiology is completely beyond me, and if I don't understand a problem, it stresses me out even more.<br />Just wanted you to know that I'm thinking of you, and hoping hard that this blip is easily resolved, and you can get back to your wonderful new normal very soon.<br />With love from across the pond xPete, Ali, Charlie and Rosiehttps://www.blogger.com/profile/11106369302348116832noreply@blogger.com